Data Archiving Permissions
- Open access · CC BY 4.0
- ISSN 2998-4211
- Published by Open Access Pub
JALR supports responsible data sharing to improve transparency and reproducibility in Alzheimer’s and dementia research. Authors archive supporting data, code and protocols in trusted repositories wherever possible.
Data-availability statement
Every empirical research manuscript must include a data-availability statement.
The statement describes where data and code are stored, how they can be accessed and any restrictions. Example: “De-identified data and analysis scripts are available in a public repository with DOI access. Restricted data are available on reasonable request from the corresponding author.”
Materials that support reuse
- De-identified participant-level data, or aggregated data when privacy is a concern.
- Analysis code, scripts and computational workflows.
- Study protocols and data dictionaries.
- Questionnaires, instruments and assessment tools where permissions allow.
- Supplementary tables, figure data and raw imaging outputs when feasible.
Choosing a repository
Subject repositories
Preferred when available, especially for neuroimaging, genomics and clinical trial data.
Institutional repositories
University or hospital repositories with access controls and governance oversight.
General repositories
Trusted platforms that provide DOIs and long-term storage for data and code.
A suitable repository provides a persistent identifier, supports long-term preservation, includes metadata for authors, funders and keywords, allows the dataset to be cited in the reference list, and offers access controls where sensitive data require them.
Sensitive data and controlled access
Data that include personal health information are de-identified and shared with the appropriate ethical approvals. When data cannot be shared publicly, authors provide controlled access through data use agreements or data access committees, and describe the limitation in the manuscript. For imaging data and biospecimens, direct identifiers are removed and consent is confirmed to allow sharing.
Limited embargoes are possible when justified by clinical trial rules, patent review or regulatory obligations; authors state the expected release date and the reason.
Code, licensing and data citation
Computational studies provide code, scripts and configuration files that allow results to be reproduced, with software versions and dependencies. If code cannot be shared publicly, authors explain the limitation and how the analysis can be verified.
Where possible, datasets carry a permissive license that enables reuse with attribution; third-party rights are documented. Datasets are cited in the reference list with the repository DOI or accession number. Articles themselves are published under CC BY 4.0; see Copyright and License.
Funder and institutional requirements
Authors may refer to a funder data management plan in the manuscript and should confirm that their approach follows funder and institutional review board rules. Controlled access is acceptable where those rules require it.
Help with data archiving
Write to info@openaccesspub.org for guidance on repositories, consent wording and data-availability statements.